During the 2010 Annual SMA Conference, Families of SMA officially launched the Erin Trainor Memorial Conference Scholarship Fund. This scholarship provides support and funding to bring newly diagnosed families to the conference each year.
Online PR News – 09-July-2010 – – Elk Grove Village, IL - July 7, 2010.
During the 2010 Annual SMA Conference, Families of SMA officially launched the Erin Trainor Memorial Conference Scholarship Fund. This spinal muscular atrophy scholarship provides support and funding to bring newly diagnosed families to the conference each year.
Our goal is to allow as many newly diagnosed SMA families as possible to attend and experience the benefits of this amazing conference. The conference gives families the opportunity to gather critical care and daily living information early after diagnosis, learn directly from experienced SMA physicians and network with other families.
Barb Trainor leads the organization of The Annual SMA Conference. This is a conference that has true impact on the lives of families, patients, researchers and doctors. This conference has been a major influence in bringing researchers into the SMA field and has created successful collaborations which move FSMA forward toward finding a treatment and cure for SMA.
In February of 1994, Barb and Gene lost their daughter Erin to SMA Type I. Gene and Barb have created a legacy for Erin by supporting other families affected by SMA to the annual conference and by running the FSMA Chesapeake Chapter, which has now raised over $2.2 Million for SMA research and support. Erin’s impact is now felt by thousands.
"The Erin Trainor Memorial Conference Scholarship Fund is an ongoing fund that each year specifically supports newly diagnosed SMA families to attend The Annual SMA Conference," said Kenneth Hobby, President of FSMA.
Families of SMA has been hosting this conference for over 20 years. The conference is filled with important, educational workshops, a memorable kids program, a family and professional banquet, a family carnival, and unmatched opportunity for SMA families to interact with other families and obtain first hand updates from important SMA researchers.
About Families of Spinal Muscular Atrophy:
FSMA is dedicated to creating a treatment and cure by: Funding and advancing a comprehensive research program; Supporting SMA families through networking, information and services; Improving care for all SMA patients; Educating health professionals and the public about SMA; Enlisting government support a; Embracing all touched by SMA in a caring community. www.curesma.org
Families of SMA
925 Busse Road
Elk Grove Village, IL 60007
Phone (800) 886-1762
Fax (847) 367-7623